You know that living with a rare disease affects more than what you can see—it affects how you feel.

This is why we invite you to register for the MORE THAN RARE mental health webinar series, hosted by mental health educator Rebecca Alexander and sponsored by Alexion. Webinars will cover mental health issues you or your loved ones may be dealing with every day, empower you to speak up, and include strategies for taking control and feeling better.

Join a community of people like yourself. You'll meet people with stories that may be like your own.

Rebecca Alexander is a mental health educator, award-winning author, extreme athlete, and disability rights advocate. Living with Usher syndrome—a rare disorder causing progressive vision and hearing loss—doesn’t define Rebecca.

Rebecca has the kind of clarity that only comes from navigating life without shortcuts, with the ability to face uncertainty, ask deeper questions, and inspire others living with the mental and emotional challenges of rare disease every day.

Join us as we defy rare disease together. Register for any or all 3 of the MORE THAN RARE mental health webinars and discover how to harness the power within.

WEBINAR 1: LIVE! Join us on June 5 at 7:30 PM ET
Managing your Relationships—loved ones come together to discuss challenges and the support needed when living with a rare disease. Learn how to talk about mental health with friends, family, spouses, and children and how to communicate with compassion if emotions run high.

Topics include:
• Managing, or avoiding, burnout
• Coping with relationship and intimacy issues
• Grieving what used to be before rare disease took over

WEBINAR 2: Premiering on June 26 at 7:30 PM ET
Finding your courage—shedding light on the often-overlooked psychological burden of living with a rare disease. Learn how to look inward and take charge of your mental health challenges.

Topics include:
• Overcoming feelings of isolation and self-doubt
• The role of therapy and self-care
• Strategies for managing a range of mental health challenges

WEBINAR 3: Premiering on July 10 at 7:30 PM ET
Reclaiming Your Power—people living with rare disease speak up and take charge of their mental health challenges. Discover how to use your voice and reclaim your power.

Topics include:
• Getting what you need from your doctor
• Empowering others by promoting advocacy and awareness
• Creating a strong support system
• Communicating lifestyle changes or accommodations to those around you